Author Archives: Joyce Graff

EAU Guidelines Changed

The European Association of Urology (EAU) published revised guidelines for second-line therapy in kidney cancer  IKCC plays an important role on the Guidelines Committee to ensure the patient perspective is incorporated.  The modified advisory is published in European Urology (2016)

Powles T, et al. European Association of Urology Guidelines for Clear Cell Renal Cancers That Are Resistant to Vascular Endothelial Growth Factor Receptor–Targeted

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Collective Wisdom: Kidney Cancer Updates from ASCO 2016

By: Deb Maskens, Vice Chair, International Kidney Cancer Coalition (

This year’s ASCO (American Society of Clinical Oncology) meeting in Chicago, June 3-7, had the theme: “Collective Wisdom, the Future of Patient-Centered Care and Research”. This meeting hosted over 30,000 attendees, including cancer researchers and healthcare professionals from all over the world, and a small but very active group of some 400 patient advocates focused on various aspects of cancer care, survivorship

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U.S. House Appropriations Committee Approves $10M for Kidney Cancer Research

After years of advocacy emphasizing the lack of kidney cancer federal funding, on Tuesday, May 17th, the House Appropriations Committee approved the FY17 Defense Appropriations Act and forwarded the bill to the full House.  The fiscal year 2017 Defense appropriations bill includes a $10 million line item within the Defense Health Program, Congressional Directed Medical Research Program for kidney cancer research. This is great news for the kidney cancer community. If this legislation is enacted

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Colombia: Fundación Simmon

by Juanita Ruiz, Colombia

Throughout the first semester of 2016 Fundación SIMMON has held three cancer patients’ meetings part of its “ASSIST” program. The program’s objective is to contribute to a better quality of life for cancer patients, relatives and caregivers by providing education and leisure opportunities in meetings where they can ask their questions to experts in medicine, nutrition psychology and law and participate in workshops and activities involving physical activity and

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Canada Honours Deb Maskens and the late Tony Clark

Two Canadians diagnosed with kidney cancer who filled a gap in the Canadian health care system received Meritorious Service Decorations June 23, 2016, from Canada’s Governor General David Johnston at a ceremony in Ottawa.

Deb Maskens and the late Tony Clark, the founders of Kidney Cancer Canada, received the decorations in recognition of the support they have provided to thousands of Canadians touched by kidney cancer.  They are part of a

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