As a global network, the IKCC is committed to addressing unmet needs for kidney cancer patients worldwide and to promoting evidence-based guidelines and quality care. As patient advocates, clinicians, patients, and caregivers, we are keen to collaborate with colleagues around the world on publications, guidelines, and patient materials.

2021 IKCC Publications

1. Giles RH, Maskens D, Martinez R, Kastrati K, Casto C, Mauro JCJ, Bick R, Packer M, Heng DYC, Larkin J, Bex A, Jonasch, MacIennan SJ, Jewett MAS. Patient-Reported Experience of Diagnosis, Management, and Burden of Renal Cell Carcinomas: Results from a Global Patient Survey in 43 countries. Accepted Dec 2021, European Urology Open Science (in press)

2. Bedke J, Albiges L, Capitanio U, Giles RH, Hora M, Lam TB, Ljungberg B, Marconi L, Klatte T, Volpe A, Abu-Ghanem Y, Dabestani S, Fernández-Pello S, Hofmann F, Kuusk T, Tahbaz R, Powles T, Bex A. 2021 Updated European Association of Urology Guidelines on the Use of Adjuvant Pembrolizumab for Renal Cell Carcinoma. Eur Urol. 2021 Dec 14:S0302-2838(21)02198-9.

3. Choueiri TK, Albiges L, Atkins MB, Bakouny Z, Bratslavsky G, Braun DA, Haas NB, Haanen JBAG, Hakimi AA, Jewett MAS, Jonasch E, Kaelin WG, Kapur P, Labaki C, Lewis B, McDermott DF, Pal SK, Pels K, Poteat S, Powles T, Rathmell WK, Rini BI, Signoretti S, Tannir NM, Uzzo RG, Hammers HJ. From Basic Science to Clinical Translation in Kidney Cancer: A Report from the Second Kidney Cancer Research Summit. Clin Cancer Res. 2021 Dec 29:clincanres.3238.2021.

4. Motzer RJ, Jonasch E, Agarwal N, Alva A, Baine M, Beckermann K, Carlo MI, Choueiri TK, Costello BA, Derweesh IH, Desai A, Ged Y, George S, Gore JL, Haas N, Hancock SL, Kapur P, Kyriakopoulos C, Lam ET, Lara PN, Lau C, Lewis B, Madoff DC, Manley B, Michaelson MD, Mortazavi A, Nandagopal L, Plimack ER, Ponsky L, Ramalingam S, Shuch B, Smith ZL, Sosman J, Dwyer MA, Gurski LA, Motter A. Kidney Cancer, Version 3.2022, NCCN Clinical Practice Guidelines in Oncology. J Natl Compr Canc Netw. 2022 Jan;20(1):71-90.

5. Bedke J, Albiges L, Capitanio U, Giles RH, Hora M, Lam TB, Ljungberg B, Marconi L, Klatte T, Volpe A, Abu-Ghanem Y, Dabestani S, Pello SF, Hofmann F, Kuusk T, Tahbaz R, Powles T, Bex A. The 2021 Updated European Association of Urology Guidelines on Renal Cell Carcinoma: Immune Checkpoint Inhibitor-based Combination Therapies for Treatment-naive Metastatic Clear-cell Renal Cell Carcinoma Are Standard of Care. Eur Urol. 2021 Oct;80(4):393-397

6. Björkqvist J, Giles RH, Cornford P, Makaroff LE, Van Hemelrijck M, Darraugh J, Cowl J, MacLennan S, MacLennan SJ. Providing a Framework for Meaningful Patient Involvement in Clinical Practice Guideline Development and Implementation. Eur Urol Focus. 2021 Sep 28:S2405-4569(21)00264-9.

7. Herrera-Caceres JO, Ajaj R, Leão R, Barello S, Rodriguez-Covarrubias F, Zequi SC, Maskens D, Giles RH, Lavallée LT, Jewett MAS. Patient-centered care can be improved by joint meetings between cancer patient group leaders and health care providers. Patient Educ Couns. 2021 Jul 16:S0738-3991(21)00482-1.

8. Vat LE, Finlay T, Robinson P, Barbareschi G, Boudes M, Diaz Ponce AM, Dinboeck M, Eichmann L, Ferrer E, Fruytier SE, Giles RH, Hey C, Broerse JEW, Schuitmaker-Warnaar TJ. Evaluation of patient engagement in medicine development: A multi-stakeholder framework with metrics. Health Expect. 2021 Apr;24(2):491-506.

9. Bedke J, Albiges L, Capitanio U, Giles RH, Hora M, Lam TB, Ljungberg B, Marconi L, Klatte T, Volpe A, Abu-Ghanem Y, Dabestani S, Fernández-Pello S, Hofmann F, Kuusk T, Tahbaz R, Powles T, Bex A. Updated European Association of Urology Guidelines on Renal Cell Carcinoma: Nivolumab plus Cabozantinib Joins Immune Checkpoint Inhibition Combination Therapies for Treatment-naïve Metastatic Clear-Cell Renal Cell Carcinoma. Eur Urol. 2021 Mar;79(3):339-3

For publications prior to 2021 please click here