Global Patient Survey

Global Patient Survey
Global Patient Survey2018-08-31T09:58:23+00:00

Together with 25 patient organisations around the world, the IKCC is conducting the first-ever global patient and caregiver survey to better understand the patient experience with kidney cancer.

We welcome you to complete the survey in the language of your choice. Please complete the survey if you are:

  • A kidney cancer patient or carer/caregiver
  • A survivor of kidney cancer
  • Someone who has been diagnosed with any type of kidney tumour in the past
  • Someone diagnosed with a hereditary syndrome that has a possible link to kidney cancer.

Please take the survey in one of eleven (11) languages here: 

How will the global patient survey results be used?

The results of the survey will be used to determine unmet patients needs around the world and to develop, wherever possible, solutions to patient issues. By combining the responses of all participating countries, our aim is to have a better understanding of the geographic variances in patient experience, identify best practices worldwide, and improve our collective understanding of the patient experience.

Responses to the survey will remain confidential and will only be used within the context of the research. Results will be professionally analysed by an objective third-party research agency that has experience with international patient surveys.

Note: The IKCC intends to conduct a survey every two years to measure trends, improvements, and inform our work together as international and national organisations serving kidney cancer patients and their families. We thank you in advance for your participation in this important initiative.

What is the Rationale for a Global Kidney Cancer Patient Survey?

How will the Global Patient Survey results be made available?

Data Privacy and Protection

Where can I find more information?

If you have any questions about the survey, please email

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