Thank you to everyone who participated in the survey. Results from this survey will inform patient support services and advocacy efforts for kidney cancer patients and their families both globally and locally.

Almost 2,000 patients and carers from 43 countries participated in the 2018 survey. Detailed reports were created for countries with more than 100 respondents. Click below to download a report:

  • Global Report (Currently embargoed pending congress publication)
  • Country Reports:
  • Preliminary data (without analysis) is available to patient organisations in the following countries that yielded fewer than 100 responses:
    • Australia
    • Brazil
    • Finland
    • Netherlands
      (Patient organisations in these countries should contact IKCC for these datasets.)

How will the Global Patient Survey results be used?

What is the Rationale for a Global Kidney Cancer Patient Survey?

Can Patients and Carers still take the Survey?

How will the Global Patient Survey results be made available?

Data Privacy and Protection

Where can I find more information?

If you have any questions about the survey, please email