2020 Global Patient Survey

Thank you to everyone who participated in the Global Patient Survey. Results from this survey will inform patient support services and advocacy efforts for kidney cancer patients and their families both globally and locally.

Over 2,000 patients and carers from 41 countries participated in the 2020 Global Patient Survey. Detailed reports were created for countries with more than 100 respondents. Click below to download a report:

Global Report:

Country Reports (Appendix 3 available separately):

Preliminary data (without analysis) is available to patient organisations in the following countries that yielded fewer than 100 responses:

  • Australia
  • Germany
  • Italy
  • Spain

(Patient organisations in these countries should contact IKCC for these datasets.)

Thank you for your participation!


How will the Global Patient Survey results be used?

What is the Rationale for a Global Kidney Cancer Patient Survey?

How will the Global Patient Survey results be made available?

Data Privacy and Protection

Where can I find more information on the Global Patient Survey?

If you have any questions about the survey, please email julia@ikcc.org


2018 Global Patient Survey

Click here to read the results from our 2018 global survey including the global report and detailed country reports for countries with more than 100 respondents: 2018 Global Patient Survey