The 2022 Global Patient Survey on Kidney Cancer
The International Kidney Cancer Coalition (IKCC) in partnership with patient organisations around the world ran the 2022 Global Patient Survey from September – November. All patients, carers and survivors were encouraged to share their experiences and insights living with kidney cancer in the online survey.
The survey is designed to identify geographic differences in patients’ experiences, highlight best practices and unmet needs related to patients’ access to care, assess quality of life, determine the prevalence of shared decision-making, and study involvement in clinical trials. In 2022, the survey also explored how patients perceive active surveillance, eligibility and access to genetic testing, and patients’ preferences related to imaging following kidney cancer surgery.
Thank you to all patients and carers who completed the survey and to all patient groups who supported it by sharing with your networks.
Interim results from the 2022 Global Survey were presented at ASCO GU 2023 (click on picture to enlarge):
Detailed country reports will be shared here soon.
How will the Global Patient Survey results be used?
What is the Rationale for a Global Kidney Cancer Patient Survey?
How will the Global Patient Survey results be made available?
Data Privacy and Protection
Where can I find more information on the Global Patient Survey?
If you have any questions about the survey, please email julia@ikcc.org
2020 Global Patient Survey
Click here to read the results from our 2020 global survey including the global report and detailed country reports for countries with more than 100 respondents: 2020 Global Patient Survey
2018 Global Patient Survey
Click here to read the results from our 2018 global survey including the global report and detailed country reports for countries with more than 100 respondents: 2018 Global Patient Survey
