Working together to reduce the global burden of kidney cancer
Kidney cancer is a global issue. Every year, 431,000 people worldwide will be diagnosed with kidney cancer.
Click here for shareable information, graphics and materials about kidney cancer for patient organisations worldwide.
Open Call: IKCC Board of Directors
We are pleased to share the Open Call for Expressions of Interest to Join the IKCC Board of Directors.
There is one Board position open for nomination for 2025: General Board Director.
Information about the position and how to apply can be found under the following link. Deadline for application is 11 August 2025.
World Kidney Cancer Day 2025 – 19 June
World Kidney Cancer Day was on Thursday 19th June 2025. The theme for 2025 was Show your kidneys some love. Inspired by findings from the recent Global Patient Survey, the campaign focused on raising awareness of the importance of kidney health when affected by kidney cancer.
The campaign featured resources in 13 languages including information about kidney health, a downloadable checklist for patients, and a Twibbon for social media. IKCC also hosted an online Global Patient & Carer Symposium, where all aspects of keeping kidneys healthy when living with kidney cancer was discussed.
2025 Global Patient Survey Highlights Report – Now Online
The 2025 Global Patient Survey Highlights Report is now available online. The report offers a snapshot of the worldwide kidney cancer patient experience, examining the geographical differences and unmet patient needs related to kidney cancer diagnosis, knowledge, quality of life, shared decision-making, clinical trials and kidney function.
Learn more about IKCC’s biennial Global Patient Survey on Kidney Cancer, including the 2025 Highlights Report here:
Tweets from @IKCCorg
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We now have more than 1,000 followers on LinkedIn! If you haven’t yet, you can follow us at https://www.linkedin.com/company/ikcc/ #KidneyCancer
We’re thrilled to launch the VHL Research Library!
Built for patients, families, and caregivers, this free online resource brings the latest VHL research into one searchable, easy-to-use place. No science degree required.
📚 Start exploring today: https://vhl.org/your-guide-to-the-vhl-research-library-simplifying-scientific-research-for-the-vhl-community/
In a European study of second-line treatments for metastatic #kidneycancer that does not respond to first-line treatment, or becomes resistant to first-line treatment, cabozantinib was the most commonly used treatment and results in good patient outcomes.
https://actionkidneycancer.org/cabozantinib-most-promising-for-refractory-metastatic-kidney-cancer/
Great job Serhat, and huge congratulations to the whole TKCC team!
It’s a joy to see this meaningful work come to life!
@OncoAlert @yekeduz_emre @kidneycan @KidneyCancer @IKCCorg
🎉 We're so excited to have @KimrynRathmell @OSUCCC_James join us in conversation during the KCA's Women in RCC summer webinar next month!
👉Register today:https://bit.ly/3Gf9wgV
Did you know?
Kidney cancer is often found by accident.
Kidney cancer is the 14th most prevalent cancer worldwide.
About 59 per cent of kidney cancer cases occur in more developed countries.
Our Global Network
IKCC welcomes every organisation that has an interest in kidney cancer and who pledges to conform to our Code of Conduct. We extend an open invitation to become part of this international network.
Join our mailing list
In the newsletter we highlight news about kidney cancer diagnosis and treatment, and other relevant discussions.