Working together to reduce the global burden of kidney cancer
Kidney cancer is a global issue. Every year, 431,000 people worldwide will be diagnosed with kidney cancer.
Click here for shareable information, graphics and materials about kidney cancer for patient organisations worldwide.
Open Call: IKCC Board of Directors
We are pleased to share the Open Call for Expressions of Interest to Join the IKCC Board of Directors.
There is one Board position open for nomination for 2025: General Board Director.
Information about the position and how to apply can be found under the following link. Deadline for application is 11 August 2025.
World Kidney Cancer Day 2025 – 19 June
World Kidney Cancer Day was on Thursday 19th June 2025. The theme for 2025 was Show your kidneys some love. Inspired by findings from the recent Global Patient Survey, the campaign focused on raising awareness of the importance of kidney health when affected by kidney cancer.
The campaign featured resources in 13 languages including information about kidney health, a downloadable checklist for patients, and a Twibbon for social media. IKCC also hosted an online Global Patient & Carer Symposium, where all aspects of keeping kidneys healthy when living with kidney cancer was discussed.
2025 Global Patient Survey Highlights Report – Now Online
The 2025 Global Patient Survey Highlights Report is now available online. The report offers a snapshot of the worldwide kidney cancer patient experience, examining the geographical differences and unmet patient needs related to kidney cancer diagnosis, knowledge, quality of life, shared decision-making, clinical trials and kidney function.
Learn more about IKCC’s biennial Global Patient Survey on Kidney Cancer, including the 2025 Highlights Report here:
Tweets from @IKCCorg
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We participated in the #KCRS25 Abstract Poster Wall. Our poster focused on “Patient Perceptions of Biomarker Testing in Kidney Cancer from the International Kidney Cancer Coalition Global Patient Survey”. #KidneyCancer
Science with a splash! 🥂 At last night's Posters and Prosecco, KCRS attendees got the chance to connect over cutting-edge research and great conversation. This event brings our community together to learn, share, and celebrate the incredible progress being made in #KidneyCancer…
Announcement: Effective immediately, Dr Bart van Goudoever (NL) will assume the role of Secretary / Treasurer Elect on the IKCC Board and take on full responsibilities on 1 November, for a 3-year term. Welcome Bart https://ikcc.org/about-ikcc/board-of-directors/bart-van-goudoever-phd/
IKCC is well represented at #KCRS25 this week, and the summit is organised by Bryan Lewis (KidneyCAN’s President & Co-Founder and IKCC’s Vice-Chair). We’re looking forward to presentations by Dr Eric Jonasch (IKCC’s Chair-Elect), including one on (1/2)
You don’t need to travel to Boston to join the conversation. All KCRS 2025 sessions will be streamed live. Register today! https://bit.ly/RegisterKCRS25
#KCRS25 #AcceleratingCures
“Building the Infrastructure for Discovery: A Clinical Trial Consortium to Accelerate Kidney Cancer Research”. Dr Axel Bex (IKCC Medical Advisory Board’s Vice-Chair) is also presenting on “International Neoadjuvant Kidney Cancer Consortium: First Year Report”. (2/2)
When you hear the words “kidney mass” “tumor” “lesion” or “growth” after a routine scan, it’s easy to feel alarmed.
But not all kidney lesions are cancerous, especially if they are small.
#kidneycancer #smallrenalmass #srm
Molecular and Therapeutic Landscape of Non-Clear Cell Renal Cell Carcinoma:
🧬🧬🧬Diverse subtypes, unique genetics, unpredictable responses.
@NatRevUrol @OncoAlert @kidneycan @IKCCorg @KidneyCancer @MehrazinMD
https://rdcu.be/ewjT8
📣 Open Call: There is one IKCC Board position open for nomination for 2025: General Board Director.
Deadline for applications is 11 August 2025. Find all details at: https://ikcc.org/call-for-expressions-of-interest-to-join-ikcc-board-of-directors/
Did you know?
Kidney cancer is often found by accident.
Kidney cancer is the 14th most prevalent cancer worldwide.
About 59 per cent of kidney cancer cases occur in more developed countries.
Our Global Network
IKCC welcomes every organisation that has an interest in kidney cancer and who pledges to conform to our Code of Conduct. We extend an open invitation to become part of this international network.
Join our mailing list
In the newsletter we highlight news about kidney cancer diagnosis and treatment, and other relevant discussions.