The International Kidney Cancer Coalition (IKCC) is an independent international network of patient organisations that focus exclusively, or include a specific focus, on kidney cancer. This network of more than 40 Affiliate Organisations on five continents work together to empower local kidney cancer communities through advocacy, awareness, information and research.

Learn more about joining IKCC here: Joining IKCC

Joining IKCC

As part of its Constitution, IKCC welcomes organisations that have an interest in kidney cancer and individual supporters who are interested in starting a local kidney cancer patient organisation and individuals who want to be a part of the IKCC network.

Affiliate Organisations criteria:

  • Focus on providing services to and/or supporting patients with kidney cancer, and raising awareness, promoting research and advocacy related to kidney cancer
  • Recognised and/or registered as a non-profit organisation
  • Abide by IKCC’s Code of Conduct and adhere to the ethical guidelines for charities and non-profits according to national contexts
  • A willingness to work with other organisations with the same objectives

Application form to join IKCC as an Affiliate Organisation

IKCC Supporter criteria:

  • Organisations who do not yet fulfil the criteria of an Affiliate Organisation
  • Individuals with an interest in kidney cancer patient support and advocacy
  • Individuals who are strongly motivated to start kidney cancer groups in their own countries

Supporters are kept informed of activities of IKCC but do not have voting rights.
Application form to join IKCC as a Supporter

Please review the following documents before joining:

List of Affiliate Organisations

AustriaEuropean Kidney Patients' Federation (EKPF)
Brazil EspacoBrazilInstituto Espaço de Vida
Brazil oncoguiaBrazilInstituto Oncoguia
Canadian VHL AllianceCanadaCanadian VHL Alliance
Kidney Cancer CanadaCanadaKidney Cancer Canada
Kidney Cancer CanadaCanadaCancer du rein Canada
Wilms Cancer FoundationCanadaWilms Cancer Foundation
ChinaCancer Foundation of China
Simmon CancerColombiaFundación Simmon
OnkomajákCzech RepublicOnkomaják
Screen Shot 2016-03-28 at 16.56.38FinlandAssociation of Cancer Patients in Finland
Association pour la Recherche sur les Tumeurs du ReinFranceAssociation pour la Recherche sur les Tumeurs du Rein
Association for VHL Affected FamiliesGermanyAssociation for VHL Affected Families
Nierenkrebs-Netzwerk DeutschlandGermanyNierenkrebs-Netzwerk Deutschland e.V.
GermanyUronauten e.V.
Ghana 150wGhanaJuliet Ibrahim Foundation
VHL Alliance (VHLA)GreeceVHL FA Alliance Greece
IndiaV Care Foundation
AntureItalyAnture - Associazione Nazionale Tumore del Rene
Flag_of_Kosovo.svgKosovoJeta me Kancer Grupi Kosovar
BORKA-For Each New DayMacedoniaBORKA-For Each New Day
Asociacion ALEMexicoAsociación ALE
MoroccoMoroccoMoroccan Fed. supporting patients with CKD and Organ Transplantation (FMAIRTO)
Belangenvereniging Von Hippel Lindau (VHL)NetherlandsBelangenvereniging VHL
NetherlandsThe Bladder or Kidney Cancer Patient Association
Move Against Cancer AfricaNigeriaMove Against Cancer Africa
Gladiator PolandPolandAssociation "GLADIATOR"
Polish Amazons Social MovementPolandPolish Amazons Social Movement
AC RIM - Kidney Cancer Association of PortugalPortugalAC RIM - Kidney Cancer Association of Portugal
Portugual APIRPortugalAssociação Portuguesa de Insuficientes Renais
SpainSpainFederación Nacional de Asociaciones para la Lucha Contra las Enfermedades del Riñón
South AfricaCampaigning for Cancer
CANSASouth AfricaCancer Association of South Africa (CANSA)
Korea Kidney Cancer AssociationSouth KoreaKorea Kidney Cancer Association
SwedenKidney Cancer Association of Sweden
UKKidney Cancer Scotland
'Action Kidney CancerUKAction Kidney Cancer
Kidney Cancer UKUKKidney Cancer UK
USA ACKCUSAAction to Cure Kidney Cancer (ACKC)
USAClimb 4 Kidney Cancer
Joey's Wings FoundationUSAJoey's Wings Foundation
Judy Nicholson Kidney Cancer FoundationUSAJudy Nicholson Kidney Cancer Foundation
kidneycancerassociationUSAKidney Cancer Association (KCA)
Kure It USAKure It Cancer Network
National Kidney FoundationUSANational Kidney Foundation
Powerful PatientUSAPowerful Patient Inc.
R.M.C.Inc.USAR.M.C. Inc.
VHL Alliance (VHLA)USAVHL Alliance (VHLA)