About IKCC

IKCC is a global collaboration of patient organisations that empowers and represents the kidney cancer community through advocacy, awareness, information and research.
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The IKCC Global Network

IKCC welcomes every organisation that has an interest in kidney cancer and extends an open invitation to all groups to become a part of this international network. IKCC also welcome individuals.
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ESMO Highlights from the International Kidney Cancer Coalition

Note: The following summary was prepared by patient advocates for the benefit of patient organisations who focus on kidney cancer. While this summary has been medically reviewed, the information contained herein is based upon public data shared at this meeting and is not intended to be exhaustive. Patients should ask their physician about any information that pertains to their care.

Summary of Kidney Cancer Take-Home Messages from ESMO 2017

Over 24,000 people attended the ESMO (European Society of Medical Oncology) meeting in Madrid from September 8–12, 2017. The International Kidney Cancer Coalition was present with a booth to raise awareness and to also attend medical and patient advocacy sessions. This year was a landmark year in that patient advocates were treated as healthcare professionals and granted ESMO membership privileges. Along with sharing our perspectives, we also shared over 30 kg of green (IKCC) apples with our oncology colleagues.

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First World Kidney Cancer Awareness Day – 22nd June 2017

On 22 June, 2017 the global kidney cancer community of patients, caregivers, families, healthcare professionals and patient organisations came together to celebrate our inaugural World Kidney Cancer Q & A Day.

Our aim was to raise much needed awareness of kidney cancer around the world by asking those who visited our website to take the brief 7 question Quiz.  Over 11,000 people from Ghana to Australia completed our seven-question online Quiz and helped raise funds at the same time.  A report is being compiled of the outcomes of the Quiz and IKCC will be publishing this report in due course. In the meantime, if you haven’t already done so, why not test your knowledge of kidney cancer and do the Quiz which will remain live on the World Kidney Cancer Q & A Day website.

Details of all the various activities that were undertaken around the world on our first World Kidney Cancer Q & A Day will be available on the website in due course so watch this space!

A huge thank you to all our affiliates and our Global Ambassador, Juliet Ibrahim for so enthusiastically embracing World Kidney Cancer Q & A Day 2017.

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IKCC Conference, Warsaw, Poland

Our seventh IKCC Conference for kidney cancer patient organisations recently held in Warsaw, Poland was a huge success. The first ever Global Kidney Cancer Awareness Day – Thursday 22nd June 2017 – was officially launched following the keynote address on the ‘Global Burden of Kidney Cancer’ delivered by Prof. Dr. Hendrik van Poppel of Belgium.

During the AGM, Dr. Eric Jonasch, an internationally recognized expert specialising in kidney cancer from Texas, USA and Dr. Elizabeth Perdeaux an expert in medical/health communications based in the UK, were elected to the IKCC Board of Directors. Read more

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Understanding Immuno-Oncology

10-for-IO logoImmuno-oncology (IO) therapy is a new (and old) way to treat cancer by activating your immune system in the hope that it will attack your tumour.  Our sister site ‘10-for-IO’ is a central resource for patient organisations to access information about immuno-oncology specifically as it applies to renal cell carcinoma. Click here for more information.

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IKCC Book of Courage and Hope

We are pleased to present the Book of Courage and Hope. This collection of the stories of patient experiences and the support provided by our affiliates in many of the countries represented among our Affiliates helps to demonstrate the important work of our Affiliates, and of the International Kidney Cancer Coalition in supporting and encouraging those Affiliates. Read about the important work of kidney cancer care around the world.

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