About IKCC

IKCC is a global collaboration of patient organisations that empowers and represents the kidney cancer community through advocacy, awareness, information and research.
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The IKCC Global Network

IKCC welcomes every organisation that has an interest in kidney cancer and extends an open invitation to all groups to become a part of this international network. IKCC also welcome individuals.
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World Kidney Cancer Q&A Day

World Kidney Cancer Q&A Day is on 21 June 2018

Leading up to the second World Kidney Cancer Day, people all around the world will be asking questions and looking for answers to help raise global awareness of kidney cancer.

World Kidney Cancer Day provides the opportunity for patients, carers, their friends and supporters, health care professionals and local kidney cancer organisations, to come together to raise awareness and start to answer those questions that will make a difference to stemming the growth of this cancer.

Our aim is to rapidly grow global awareness of Kidney Cancer and encourage people to share what they know about this disease.

Read more about World Kidney Cancer Day here.

Take our 2-minute quiz here at worldkidneycancerday.org

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2018 Annual Conference

Our 8th IKCC Conference for kidney cancer patient organisations recently held in Mexico City, Mexico was a huge success with over 50 kidney cancer patient advocates from 25 countries attending . Throughout the three-day meeting patient organisation leaders learned about latest developments in kidney cancer care, discussed active patient involvement and shared experiences with national healthcare policies. This meeting was held alongside a Clinical Experts meeting hosted by the Latin American Renal Cancer Group (LARCG) the Mexican Society of Urology (SMU) and the Mexican Association of Urological Oncology (MAUO). During the Annual General Meeting, Dr. Rachel Giles, Chair of IKCC, announced the organisation’s inaugural Medical Advisory Board.

For information about the conference and the new IKCC Medical Advisory Board please click here:
IKCC News Item 2018-04

For information on our past conferences please click here

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ESMO Highlights from the International Kidney Cancer Coalition

Note: The following summary was prepared by patient advocates for the benefit of patient organisations who focus on kidney cancer. While this summary has been medically reviewed, the information contained herein is based upon public data shared at this meeting and is not intended to be exhaustive. Patients should ask their physician about any information that pertains to their care.

Summary of Kidney Cancer Take-Home Messages from ESMO 2017

Over 24,000 people attended the ESMO (European Society of Medical Oncology) meeting in Madrid from September 8–12, 2017. The International Kidney Cancer Coalition was present with a booth to raise awareness and to also attend medical and patient advocacy sessions. This year was a landmark year in that patient advocates were treated as healthcare professionals and granted ESMO membership privileges. Along with sharing our perspectives, we also shared over 30 kg of green (IKCC) apples with our oncology colleagues.

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Understanding Immuno-Oncology

10-for-IO logoImmuno-oncology (IO) therapy is a new (and old) way to treat cancer by activating your immune system in the hope that it will attack your tumour.  Our sister site ‘10-for-IO’ is a central resource for patient organisations to access information about immuno-oncology specifically as it applies to renal cell carcinoma. Click here for more information.

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IKCC Book of Courage and Hope

We are pleased to present the Book of Courage and Hope. This collection of the stories of patient experiences and the support provided by our affiliates in many of the countries represented among our Affiliates helps to demonstrate the important work of our Affiliates, and of the International Kidney Cancer Coalition in supporting and encouraging those Affiliates. Read about the important work of kidney cancer care around the world.

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