IKCC is a global collaboration of patient organisations that empowers and represents the kidney cancer community through advocacy, awareness, information and research.
The IKCC Global Network
IKCC welcomes every organisation that has an interest in kidney cancer and extends an open invitation to all groups to become a part of this international network. IKCC also welcome individuals.
Our 8th IKCC Conference for kidney cancer patient organisations recently held in Mexico City, Mexico was a huge success with over 50 kidney cancer patient advocates from 25 countries attending . Throughout the three-day meeting patient organisation leaders learned about latest developments in kidney cancer care, discussed active patient involvement and shared experiences with national healthcare policies. This meeting was held alongside a Clinical Experts meeting hosted by the Latin American Renal Cancer Group (LARCG) the Mexican Society of Urology (SMU) and the Mexican Association of Urological Oncology (MAUO). During the Annual General Meeting, Dr. Rachel Giles, Chair of IKCC, announced the organisation’s inaugural Medical Advisory Board.
For information about the conference and the new IKCC Medical Advisory Board please click here:
IKCC News Item 2018-04
For information on our past conferences please click hereFull Post
Welcome from the Board
Dr. Rachel Giles, NL
Welcome to the first IKCC newsletter in 2018. This newsletter summarises some of the projects that the IKCC, our Board and Affiliate Organisations have been up to in the last few months, including some information about the 2018 conference in Mexico City in April and World Kidney Cancer Q&A Day in June.
We hope that you enjoy this newsletter and wish you all a happy and prosperous new year.
Read full version of the newsletter here: 2018 January IKCC NewsletterFull Post
Note: The following summary was prepared by patient advocates for the benefit of patient organisations who focus on kidney cancer. While this summary has been medically reviewed, the information contained herein is based upon public data shared at this meeting and is not intended to be exhaustive. Patients should ask their physician about any information that pertains to their care.
Summary of Kidney Cancer Take-Home Messages from ESMO 2017
Over 24,000 people attended the ESMO (European Society of Medical Oncology) meeting in Madrid from September 8–12, 2017. The International Kidney Cancer Coalition was present with a booth to raise awareness and to also attend medical and patient advocacy sessions. This year was a landmark year in that patient advocates were treated as healthcare professionals and granted ESMO membership privileges. Along with sharing our perspectives, we also shared over 30 kg of green (IKCC) apples with our oncology colleagues.Full Post
On 22 June, 2017 the global kidney cancer community of patients, caregivers, families, healthcare professionals and patient organisations came together to celebrate our inaugural World Kidney Cancer Q & A Day.
Our aim was to raise much needed awareness of kidney cancer around the world by asking those who visited our website to take the brief 7 question Quiz. Over 11,000 people from Ghana to Australia completed our seven-question online Quiz and helped raise funds at the same time. A report is being compiled of the outcomes of the Quiz and IKCC will be publishing this report in due course. In the meantime, if you haven’t already done so, why not test your knowledge of kidney cancer and do the Quiz which will remain live on the World Kidney Cancer Q & A Day website.
Details of all the various activities that were undertaken around the world on our first World Kidney Cancer Q & A Day will be available on the website in due course so watch this space!
A huge thank you to all our affiliates and our Global Ambassador, Juliet Ibrahim for so enthusiastically embracing World Kidney Cancer Q & A Day 2017.Full Post
Immuno-oncology (IO) therapy is a new (and old) way to treat cancer by activating your immune system in the hope that it will attack your tumour. Our sister site ‘10-for-IO’ is a central resource for patient organisations to access information about immuno-oncology specifically as it applies to renal cell carcinoma. Click here for more information.Full Post