As a global network, the IKCC is committed to addressing unmet needs for kidney cancer patients worldwide and to promoting evidence-based guidelines and quality care. As patient advocates, clinicians, patients, and caregivers, we are keen to collaborate with colleagues around the world on publications, guidelines, and patient materials.
IKCC Publications 2025
Manuscripts
Bedke J, Ghanem YA, Albiges L, Bonn S, Campi R, Capitanio U, Dabestani S, Hora M, Klatte T, Kuusk T, Lund L, Marconi L, Palumbo C, Pignot G, Powles T, Tran M, Volpe A, Bex A. Updated European Association of Urology Guidelines on the Use of Adjuvant Immune Checkpoint Inhibitors and Subsequent Therapy for Renal Cell Carcinoma. Eur Urol. 2025 Apr;87(4):491-496. doi: 10.1016/j.eururo.2025.01.014. Epub 2025 Feb 3. PMID: 39904712.
Berg SA, La Rosa S, Zhang T, Pierorazio PM, Albiges L, Beckermann KE, Campbell MT, Carlo MI, Coleman K, George DJ, Geynisman DM, Johnson R, Jonasch E, Maranchie JK, McGregor BA, Shapiro DD, Singer EA, Shuch BM, Stadler WM, Tannir NM, Zakharia Y, Vaishampayan UN, Thall PF, Msaouel P.(Epub 2024). Impact of postprogression therapies on overall survival: Recommendations from the 2023 kidney cancer association think tank meeting. Urol Oncol. 2025 Mar;43(3):135-146. doi: 10.1016/j.urolonc.2024.10.022. Epub 2024 Nov 5. PMID: 39500687.
Beyer K, Venderbos LDF, Roobol MJ, Giles RH, Verhagen P, Barod R, Wintner LM, Jewett MAS, Van Hemelrijck M, Kinsella N. Navigating choices: understanding the decision-making journey of patients with localised kidney cancer. BJU Int. 2025 Jun;135(6):953-959. doi: 10.1111/bju.16635. Epub 2025 Jan 8. PMID: 39778039; PMCID: PMC12053016.
Bex A, Ghanem YA, Albiges L, Bonn S, Campi R, Capitanio U, Dabestani S, Hora M, Klatte T, Kuusk T, Lund L, Marconi L, Palumbo C, Pignot G, Powles T, Schouten N, Tran M, Volpe A, Bedke J. European Association of Urology Guidelines on Renal Cell Carcinoma: The 2025 Update. Eur Urol. 2025 Mar 10:S0302-2838(25)00139-3. doi: 10.1016/j.eururo.2025.02.020. Epub ahead of print. PMID: 40118739.
Bex A, Jewett M, Lewis B, Abel EJ, Albiges L, Berg SA, Bratslavsky G, Braun D, Brugarolas J, Choueiri TK, Finelli A, George D, Haas NB, Hakimi AA, Hammers H, Hirsch M, Jonasch E, Kapur P, Linehan WM, Master V, McGregor B, McKay RR, Mehra R, Pal S, Poteat S, Powles TB, Rossi SH, Shapiro DD, Signoretti S, Singer EA, Stravin C, Tannir N, Vaishampayan U, Xu W, Stewart GD. A Call for a Neoadjuvant Kidney Cancer Consortium: Lessons Learned from Other Cancer Types. Eur Urol. 2025 Apr;87(4):385-389. doi: 10.1016/j.eururo.2025.01.007. Epub 2025 Jan 23. PMID: 39855942.
Marandino L, Campi R, Amparore D, Tippu Z, Albiges L, Capitanio U, Giles RH, Gillessen S, Kutikov A, Larkin J, Motzer RJ, Pierorazio PM, Powles T, Roupret M, Stewart GD, Turajlic S, Bex A. Neoadjuvant and Adjuvant Immune-based Approach for Renal Cell Carcinoma: Pros, Cons, and Future Directions. Eur Urol Oncol. 2025 Apr;8(2):494-509. doi: 10.1016/j.euo.2024.09.002. Epub 2024 Sep 25. PMID: 39327187.
Degenhardt J, Tolkach Y, Amin MB, Mosiello G, Baydar DE, Gall EC, DiCola J, Elhag D, Frezza C, Halbritter J, Guillermo IB, Jewett MAS, Lattouf JB, Lovitt G, Lundgren PO, Maher ER, Mulders P, Shuch B, Hartmann A, Müller RU; HLRCC Alliance in collaboration with the ERA Working Group “Genes&Kidney”, the European Reference Networks ERKNet, eUROGEN and GENTURIS, the Uropathology Working Group of the European Society of Pathology and the IKCC. The impact of the new WHO Classification of renal cell carcinoma on the diagnosis of hereditary leiomyomatosis and renal cell carcinoma. Nephrol Dial Transplant. 2025 Feb 20:gfaf032. doi: 10.1093/ndt/gfaf032. Epub ahead of print. PMID: 39979023.
Beyer K, Venderbos LDF, Roobol MJ, Giles RH, Verhagen P, Barod R, Wintner LM, Jewett MAS, Van Hemelrijck M, Kinsella N. Navigating choices: understanding the decision-making journey of patients with localised kidney cancer. BJU Int. 2025 Jan 8. doi: 10.1111/bju.16635. Epub ahead of print. PMID: 39778039.
IKCC Abstracts
EAU – 25 – Poster
Empowering Choices: Insights from Healthcare Professionals on Shared Decision-Making in Kidney Cancer
Authors: Katharina Beyer, Lionne Venderbos, Monique Roobol, Olivier Exertier, Deborah Maskens, Michael Jewett
AUA25 – Poster
Beyer, Katharina & Venderbos, Lionne & Roobol, Monique & Maskens, Deborah & Jewett, Michael. (2025). Empowering Choices: Insights From Healthcare Professionals On Shared Decision-Making In Kidney Cancer. Journal Of Urology. 213.
EMUC 25 – Poster
Mapping patient experiences: addressing gaps in care for people living with localised renal cell carcinoma
Authors: Deborah Maskens, Denis Brézillon, Pascale Cavillon, Christine Collins, Sharon Deveson Kell, Andrew Greaves, Viktor Grünwald, Daniel YC Heng, Juan Carlos Julián Mauro, Karin Kastrati, James Larkin, Alessia Ogareva, Malcolm Packer, Giuseppe Procopio, Claudia Ungarelli, Michael Jewett
EMUC 25 – Poster
Shared Decision Making in Urology: Consensus and challenges identified by the joint patient advocates, nurses, and urologists from the EAU patient office.
Authors: MacLennan S., van Balken M., van Poppel H., Karavitakis M., Tiller C., van Poelgeest-Pomfret M.L., Briers E., Meijlink J., Filicevas A., Ungarelli C., Comes R., Cardone A., Liatsikos, E.,
Caldwell J., Greene R., Daly J., deSantis A., Yared W., Rogers E.
ESMO 2025 – Poster
Unmet Needs & Disparities in Kidney Cancer (KC): International Kidney Cancer Coalition (IKCC) Global Patient Survey (GPS)
Authors: Eric Jonasch,, Michael Jewett,, Axel Bex, Stênio de Cássio Zequi, Shannon Boldon, Christine Collins, Saeed Dabestani, Selcuk Erdem, Margaret Hickey, Karin Kastrati, Jyoti Patil Shah, Roman Sosnowski, Yüksel Ürün, & Deborah Maskens
JADPROLive – Poster
Patient and Caregiver Perspectives on Shared Decision Making in Kidney Cancer from the International Kidney Cancer Coalition Global Patient Survey
Authors: Margaret Hickey, Eric Jonasch, Michael Jewett, Christine Collins, Karin Kastrati, Robin Martinez, Jyoti Patil Shah, Deborah Maskens, Stênio de Cássio Zequi
IKCS NA – Poster
Knowledge Gaps and Shared Decision Making (SDM) Disparities in Kidney Cancer (KC) Across North America (NA): Results from the International Kidney Cancer Coalition (IKCC) Global Patient Survey (GPS)
Authors: Eric Jonasch, Deborah Maskens, Stênio de Cássio Zequi, Christine Collins, Omar de Jesus, Margaret Hickey, Robin Martinez & Michael Jewett
ESMO Asia – Mini Oral presentation with expert discussant
Knowledge Gaps and Shared Decision Making (SDM) Disparities in Kidney Cancer (KC) Across Asia: Results from the International Kidney Cancer Coalition (IKCC) Global Patient Survey
Authors: Muralitharan Munisamy, Eric Jonasch,, Michael Jewett,Deborah Maskens, Selcuk Erdem, Olivier Exertier, Margaret Hickey, Jinyung Paik, Inkeon Park7 Jyoti Patil Shah, Dr. Yoshi Tomita, Yüksel Ürün, Anne Wilson & Stênio de Cássio Zequi
For publications prior to 2025 please click here