Kidney Cancer Research Symposium
Boston, US
July 2025
Patient Perceptions of Biomarker Testing in Kidney Cancer (KC) from the International Kidney Cancer Coalition (IKCC) Global Patient Survey (GPS)
A poster presentation by Dr Eric Jonasch and a corresponding abstract shared GPS results related to patients’ perceptions of biomarker testing. While there is currently no biomarker test to detect or guide the treatment of kidney cancer, this research helps predict patient population readiness and acceptance in advance of introducing the potential new discoveries.
When asked about doctors using future biomarker tests to guide treatment, approximately 50% of respondents expressed trust or general trust in the scientific process, while the other 50% had concerns or were unsure. The GPS revealed perceptions of biomarker testing varied by country, age, sex, and stage of kidney cancer. Overall, most respondents in the US were open to biomarker tests for circulating tumor cells and/or genomic testing.
Find more details in the Poster here.
Find the Abstract here, on page 68: https://kcrs.kidneycan.org/wp-content/uploads/2025/07/KCRS25-Abstract-Book-7.14.25.pdf
ESMO (European Society of Medical Oncology)
Berlin, DE
October 2025
Unmet Needs & Disparities in Kidney Cancer (KC): International Kidney Cancer Coalition (IKCC) Global Patient Survey (GPS)
Dr Eric Jonasch presented GPS findings, which focused on the unmet needs and disparities in kidney cancer. The poster presentation and corresponding abstract showcased survey results related to oral therapy adherence, the emotional impact of a kidney cancer diagnosis, clinical trial participation and shared decision-making.
Find more details in the Poster here.
Find the Abstract here: https://cslide.ctimeetingtech.com/esmo2025/attendee/confcal_2/presentation/list?q=2631P
JADPRO Live Annual Meeting (Journal of the Advanced Practitioner in Oncology)
Maryland, US
October 2025
Patient and Caregiver Perspectives on Shared Decision Making in Kidney Cancer from the International Kidney Cancer Coalition Global Patient Survey
At the leading US-based conference for advanced oncology practitioners in the US, a poster presentation by Margie Hickey and a corresponding abstract revealed GPS findings related to shared decision making (SDM). Specifically, the GPS found globally more respondents surveyed in 2024 than in 2022 indicated they were involved as much as they wanted to be in decisions about their treatment plan (55% vs 48%). However, SDM involvement varied between tumor type, treatment center, age group, stage, and type of therapy received. Furthermore, despite the rise in SDM, the GPS showed there are still significant gaps in patients’ levels of understanding their disease and treatments.
Factors that impact oral treatment adherence was also explored, including being involved as much as desired in treatment decisions, completely understanding treatment recommendations and completely understanding oral treatment options was also explored.
Find more details in the Poster here.
International Kidney Cancer Symposium – North America
Denver, US
November 2025
Knowledge Gaps and Shared Decision Making (SDM) Disparities in Kidney Cancer (KC) Across North America (NA): Results from the International Kidney Cancer Coalition (IKCC) Global Patient Survey (GPS)
In this North American-focused poster presentation and a corresponding abstract, GPS data related to gaps in patients’ understanding of kidney cancer and disease management, barriers to treatment and shared decision making (SDM). Specifically, the experiences of patients in Canada, Mexico and the United States were compared in relation to barriers to treatment, the level of involvement in treatment decisions and patients’ support sources. The significant differences between countries suggest there is opportunity for further investigation and practice sharing between countries.
Find more details in the Poster here.
Find the Abstract here: https://www.kidneycancer.org/wp-content/uploads/2025/12/IKCSNA25-Abstract-Book.pdf
ESMO Asia Congress
Singapore
December 2025
Knowledge Gaps and Shared Decision-Making Disparities in Kidney Cancer Across Asia: Results from the International Kidney Cancer Coalition (IKCC) Global Patient Survey
Dr Muralitharan Munisamy (MY), a member of IKCC’s Medical Advisory Board, made an oral presentation highlighting the Asia-related findings from the GPS at ESMO Asia. The presentation compared the global average with results from India, Japan, South Korea and Türkiye on the topics of barriers to treatment, shared decision-making, and patients’ knowledge related to diagnosis, prognosis and treatment. Overall, it was found patient experiences vary significantly by country, presenting opportunities for further investigation and best practice sharing by patient organisations and healthcare providers.
Find more details in the Presentation here.
Find the abstract here: https://cslide.ctimeetingtech.com/asia2025/attendee/confcal/presentation/list?q=Knowledge