Welcome to the International Kidney Cancer Coalition (IKCC) website. The IKCC is a Foundation registered in the Netherlands under Stichting International Kidney Cancer Coalition, registered number: KvK 62070665
By entering this website, you agree to be bound by the policies and terms and conditions shown below:
1. Privacy and data protection policy
How do we collect information?
We obtain personal information about you when you subscribe for our newsletter, send an electronic enquiry, enquire about our activities or otherwise provide us with personal information.
Consent for the collection and use of personal information
What information do we collect about you?
Personal information we may hold could include:
- Full name
- Contact information, such as email address, postal address, telephone number and place of work should you provide it.
We also gather information about the use of our website, such as pages most visited and activities of most interest to users. We may use this information to make improvements to our website and to ensure we provide a user-friendly service. This information is anonymous and does not identify individual users of our website.
What we do with the information we gather?
We will use this information:
- To help us provide you with a better service
We will not sell, distribute, gift or lease your personal information to third parties, unless we have your express permission to do so.
We may, with your permission, use your information to provide copies of our newsletter, update you with information regarding changes to our website, and inform you of events or news items that may be of interest to you.
If you do not want us to contact you, please clearly marking the subject box ‘unsubscribe’.
We will hold your information for as long as is required to continue to provide you with our services, or until you ask us to delete it, withdraw your consent for us to hold your information, or ‘unsubscribe’.
Access to your personal information
You have the right to request a copy of all the personal information that we hold about you under the EU General Data Protection Regulation 2018 (for which we may charge a small fee). If you believe any information we are holding about you is incorrect or incomplete, please write or as soon as possible. We will promptly correct any information found to be incorrect.
You have the right to request deletion of your personal information at any time and for any reason. If you wish to have your personal information removed from our database, or you want to receive a copy of the information that we hold, .
Security and links
In accordance with best practice, we have made every effort to safeguard and secure the personal information that we receive in order to prevent unauthorised access or disclosure.
If you use standard email to communicate with us, including email links and email forms on this website, please be aware this may be routed via third party internet providers and may not be secure.
Our website contains links to websites run by other organisations; we are not responsible for the privacy practices of these organisations and we do not have any control over third party websites. Therefore, we cannot be responsible for the protection and privacy of any information you provide whilst visiting other sites, and you should read their privacy policies carefully.
What are cookies?
Cookies are small text files sent by web servers and web browsers, which retrieve information about your visit to our site; for example, how you entered our site, how you navigated through the site, and what information was of interest to you. The information is sent back to the server and used to identify and track web browsers.
The cookies identify you merely as a reference number. We do not record personal information.
Cookies on our website
Overall, cookies help us provide you with a better website, by enabling us to monitor which pages you find useful and which you do not. A cookie in no way gives us access to your computer or any information about you.
Cookies help us improve our website to make it better and easier for you to use. We only use this information for statistical analysis purposes and to improve the services we provide.
Types of cookies
There are two main types of cookies:
- First party cookies’ are served directly by the website operator to your computer, and recognise your computer when it revisits the website. These cookies also remember your preferences as you browse the site
- ‘Third party cookies’ are served by a service provider on behalf of the website operator, and are used for website analytics or advertising purposes.
Cookies may also be ‘session cookies’ or ‘persistent cookies’. Session cookies are automatically removed from your computer when you close your browser. Persistent cookies remain on your computer until an expiry date specified in the cookie itself or until you take action yourself to clean/remove them from your computer.
You can choose to accept or decline cookies at the time you enter our website. Most web browsers automatically accept cookies, but you can usually modify your browser’s privacy settings to alert you to cookies and to decline them if you prefer.
3. Website terms and conditions
By entering our website, you agree and are bound by the following terms and conditions:
This website is owned by IKCC. Any use made of this site is subject to these terms and conditions. IKCC may, from time to time and at its sole discretion, update or revise these terms and conditions by amending the text on this page. We will notify you of any changes that are made to our website policies, and you should check this page to make sure you are happy with any changes made.
Use of the website
You agree to use this site only for lawful purposes, and in a manner which does not infringe the rights, or restrict, or inhibit the use and enjoyment of the site by any third party.
The information contained in this website is available for anyone to use for their own purposes, provided the information is not reproduced on any other website or used for commercial gain.
No part of the website is to be copied, stored, or transmitted in any form without the written permission of IKCC.
There are links to other websites from our website to increase the scope and usefulness of the information contained on our site, and which we hope you will find interesting. However, we are not responsible for the content of these websites, or the accuracy of the information they hold.
Our website provides general information only, and none of the information contained within our site shall be deemed to constitute medical advice in any way. You should seek appropriate medical advice or guidance from your doctor or health care team in relation to any medical condition.
Accuracy of the website
We have taken great care to ensure the content of this website is up-to-date and free from errors. However, we cannot guarantee that the information contained in this site will be completely error free, or that this site or the server that makes it available are free of viruses or bugs, or that defects will be identified and rectified. If you notice any defects or errors on our website, we would be grateful if you could notify us .
Images and photographs
In order to protect the privacy of the individuals featured on the website, please do not download or distribute photographs or stories from our website without obtaining express written permission to do so from IKCC. If we are made aware of such activity, you may be subject to legal action by IKCC.
4. Monitoring and review
This policy will be monitored by the IKCC management team annually to judge its effectiveness, and will be updated in accordance with changes in the law as appropriate. We will report to the Board of Directors on any actions or activities undertaken that are covered by this policy. Any information provided by members of the Board of Directors, consultants, contractors, volunteers for monitoring purposes will be used only for these purposes, and will be dealt with in accordance with the EU General Data Protection Regulation 2018.
Policy Updated: May 2018
Next Review: May 2019