IKCC Global Patient Survey on Kidney Cancer
To improve collective understanding, IKCC collaborates with Partner Organisations to develop and administer a biennial Global Patient Survey on Kidney Cancer. The survey is open to anyone who has received a diagnosis or is a carer.
The results gathered in the Global Patient Surveys help patient organisations locally and IKCC globally create evidence-based education, awareness and advocacy programs that respond to the needs of people affected by kidney cancer. Global Patient Survey results have been published in scientific manuscripts, presented at medical conferences, informed educational resources and helped guide World Kidney Cancer Day campaigns.
Thank you to the patients, survivors and carers who have completed the survey. Together we are generating the evidence that will help reduce the global burden of kidney cancer.
The 4th Global Patient Survey on Kidney Cancer
The 4th Global Patient Survey on Kidney Cancer was published online from September to November 2024 and analysed in 2025. The 2025 Highlights Report provides a snapshot of the worldwide kidney cancer patient experience with a focus on kidney cancer diagnosis, knowledge, quality of life, shared decision-making, clinical trials and kidney function.
Questions about the GPS? Read the Frequently Asked Questions now.
Find out more about the past surveys below.
2022 Global Patient Survey
Click here to read the results from our 2022 global survey including the global report and detailed country reports for countries with more than 100 respondents: 2022 Global Patient Survey
2020 Global Patient Survey
Click here to read the results from our 2020 global survey including the global report and detailed country reports for countries with more than 100 respondents: 2020 Global Patient Survey
2018 Global Patient Survey
Click here to read the results from our 2018 global survey including the global report and detailed country reports for countries with more than 100 respondents: 2018 Global Patient Survey
