Thank you to everyone who participated in the Global Patient Survey. Results from this survey will inform patient support services and advocacy efforts for kidney cancer patients and their families both globally and locally.
Almost 2,000 patients and carers from 43 countries participated in the 2018 Global Patient Survey. Detailed reports were created for countries with more than 100 respondents. Click below to download a report:
- Global Reports:
- Country Reports:
- Congress Posters and Presentations:
- IPOS September 2019: IPOS2019 Patient-Reported Experience of Diagnosis, Management, and Burden of Renal Cell Carcinomas: Results from a Global Patient Survey in 43 countries
- ESMO Congress September 2019: ESMO2019 Patient-Reported Experience of Diagnosis, Management, and Burden of Renal Cell Carcinomas: Results from a Global Patient Survey in 43 countries
- Preliminary data (without analysis) is available to patient organisations in the following countries that yielded fewer than 100 responses:
- Australia
- Brazil
- Finland
- Netherlands
(Patient organisations in these countries should contact IKCC for these datasets.)
How will the Global Patient Survey results be used?
What is the Rationale for a Global Kidney Cancer Patient Survey?
Can Patients and Carers still take the Survey?
How will the Global Patient Survey results be made available?
Data Privacy and Protection
Where can I find more information on the Global Patient Survey?
If you have any questions about the survey, please email julia@ikcc.org
