Who We Are

The International Kidney Cancer Coalition (IKCC) is an independent international network of patient organisations that focus exclusively, or include a specific focus, on kidney cancer. It is legally incorporated as a Foundation in the Netherlands. The organisation was born from a very strong desire among various national kidney cancer patient groups to network, cooperate and share materials, knowledge, and experiences.

IKCC is governed by a volunteer Board of Directors with members from a minimum of four countries. Organisations may apply to become Affiliate Organisations.

For more information see our IKCC_brochure.

IKCC brochure
IKCC brochure

Together we are Stronger:


Kidney cancer knows no country boundaries. We all live in a globalised world. Research and clinical trials in kidney cancer are spread across continents and many kidney cancer experts are working on international panels. By working together as patient organisations, we are able to speak as ONE VOICE to represent the perspectives, insights and experiences of kidney cancer patients from around the world. This is empowering to individual patients and also patient organisations.

We have seen from the experience of other rare cancers that this type of an international network can be very valuable, supportive and inspiring. A lot of groups and organisations, especially in rare cancers have limited capacity and resources and they embrace the opportunity to be part of a larger stronger network which allows them to share best practice, information, and to cooperate and work on similar projects.


2015 Activity and Financial Report:


Click the link below to receive a copy of our 2015 Activity Report, including a report on our 2015 annual conference in Morristown, New Jersey.

Additionally, to view our full independently audited financial statements please click the link below.  The IKCC is committed to transparency and accountability according to laws governing patient organisations in the Netherlands.


Activity Report 2014/15 with financials

Request Download of our 2015 Financial Report as prepared by the independent auditor

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