As a global network, the IKCC is committed to addressing unmet needs for kidney cancer patients worldwide and to promoting evidence-based guidelines and quality care. As patient advocates, clinicians, patients, and caregivers, we are keen to collaborate with colleagues around the world on publications, guidelines, and patient materials.
Recent publications include:
1. Bex A, Albiges L, Staehler M, Bensalah K, Giles RH, Dabestani S, Hofmann F, Hora M, Kuczyk MA, Lam TB, Marconi L, Merseburger AS, Fernández-Pello S, Tahbaz R, Abu-Ghanem Y, Volpe A, Ljungberg B, Escudier B, Powles T.
A joint statement from the EUA and patient organisations (IKCC): The rejection of ipilimumab and nivolumab for renal cancer by CHMP does not change evidence-based guideline recommendations.
European Urology 2018 (in press)
2. Grünwald V, Eberhardt B, Bex A, Flörcken A, Gauler T, Derlin T, Panzica M, Dürr HR, Grötz KA,Giles RH, Falck Cv, Graser A, Muacevic A, Staehler M.
An interdisciplinary consensus on the management of bone metastases from renal cell carcinoma.
Nature Reviews Urology volume 15, pages 511–521 (2018)
3. Sun M, Marconi L, Eisen T, Escudier B, Giles RH, Haas N, Harshman L, Quinn D, Larkin J, Pal S, Powles T, Ryan C , Sternberg C, Uzzo R, Choueiri T , Bex A.
Adjuvant vascular endothelial growth factor (VEGF) targeted therapy in renal cell carcinoma: a systematic review and pooled-analysis.
Eur Urol. 2018 May 18.[Epub ahead of print]
4. Addario BJ, Fadich A, Fox J, Krebs L, Maskens D, Oliver K, Schwartz E, Spurrier-Bernard G, Turnham T.
Patient value: Perspectives from the advocacy community.
Health Expect. 2018 Feb;21(1):57-63. doi: 10.1111/hex.12628. Epub 2017 Sep 20. Review. PubMed PMID: 28940536; PubMed Central PMCID: PMC5750698.
5. Vogel C, Ziegelmüller B, Ljungberg B, Bensalah K, Bex A, Canfield S, Giles RH, Hora M, Kuczyk MA, Merseburger AS, Powles T, Albiges L, Stewart F, Volpe A, Graser A, Schlemmer M, Yuan C, Lam T, Staehler M
Imaging in Suspected Renal Cell Carcinoma: A Systematic Review
Clinical Genitourinary Cancer (2018), doi: 10.1016/j.clgc.2018.07.024.
6. Powles T, Albiges L, Staehler M, Bensalah K, Dabestani S, Giles RH, Hofmann F, Hora M, Kuczyk MA, Lam TB, Marconi L, Merseburger AS, Fernández-Pello S, Tahbaz R, Volpe A, Ljungberg B, Bex A.
Updated European Association of Urology Guidelines Recommendations for the Treatment of First-line Metastatic Clear Cell Renal Cancer.
Eur Urol. 2017 Dec 7. pii: S0302-2838(17)31001-1. doi: 10.1016/j. eururo.2017.11.016. [Epub ahead of print] PubMed PMID: 29223605.
7. Fernández-Pello S, Hofmann F, Tahbaz R, Marconi L, Lam TB, Albiges L, Bensalah K, Canfield SE, Dabestani S, Giles RH, Hora M, Kuczyk MA, Merseburger AS, Powles T, Staehler M, Volpe A, Ljungberg B, Bex A.
A Systematic Review and Meta-analysis Comparing the Effectiveness and Adverse Effects of Different Systemic Treatments for Non-clear Cell Renal Cell Carcinoma.
Eur Urol. 2017 Mar;71(3):426-436. doi:10.1016/j.eururo.2016.11.020. Epub 2016 Dec 8. Review. PubMed PMID: 27939075.
8. Giles RH, Choueiri TK, Heng DY, Albiges L, Hsieh JJ, Linehan WM, Pal S, Maskens D, Paseman B, Jonasch E, Malouf G, Molina AM, Pickering L, Shuch B, Srinivas S, Srinivasan R, Tannir NM, Bex A.
Recommendations for the Management of Rare Kidney Cancers.
Eur Urol. 2017 Dec;72(6):974-983. doi: 10.1016/j.eururo.2017.06.040. Epub 2017 Jul 16. Review. PubMed PMID: 28720391.
9. MacLennan SJ, MacLennan S, Bex A, Catto JWF, De Santis M, Glaser AW, Ljungberg B, N’Dow J, Plass K, Trapero-Bertran M, Van Poppel H, Wright P, Giles RH.
Changing Current Practice in Urology: Improving Guideline Development and Implementation Through Stakeholder Engagement.
Eur Urol. 2017 Aug;72(2):161-163. doi: 10.1016/j.eururo.2017.02.008. Epub 2017 Feb 22. PubMed PMID: 28237788.
10. Bex A, Albiges L, Ljungberg B, Bensalah K, Dabestani S, Giles RH, Hofmann F, Hora M, Kuczyk MA, Lam TB, Marconi L, Merseburger AS, Staehler M, Volpe A, Powles T.
Updated European Association of Urology Guidelines Regarding Adjuvant Therapy for Renal Cell Carcinoma.
Eur Urol. 2017 May;71(5):719-722. doi: 10.1016/j.eururo.2016.11.034. Epub 2016 Dec 13. PubMed PMID: 27986369.