A decision aid for people with advanced renal cell carcinoma (kidney cancer)

The principle that patients should be involved in the decisions made about their own health and care, has been talked about for many years. Shared decision making starts with a conversation between the person who is receiving care and the person delivering care and develops into a process in which healthcare professionals and patients work together to make the best possible decisions based on clinical evidence and the patient’s own preferences.


As patients and patient advocates for the kidney cancer community, IKCC believes that patients and their families have an essential role to play in healthcare decisions that affect their lives. Our decision aid booklet for people with advanced kidney cancer, was written by a collaborative team of patients, patient advocates and medical professionals who between them, have supported thousands of kidney cancer patients worldwide.

You may find that this booklet contains a lot of medical information and new terms. If you find it difficult to read all at once it may be helpful to read it in sections or to reread it again at another time. The “My kidney cancer dictionary” is included to help you understand the medical terms that are used throughout the booklet.


We hope you will find this booklet helpful as you navigate the decisions ahead in partnership with your healthcare team

To download a copy of the IKCC decision aid please click the image on the left.

We would be grateful if you would take the time to give us feedback about this booklet by completing the very short survey at:   https://www.surveymonkey.co.uk/r/VZFDBSV.


We have a limited supply of hard copy booklets available for anyone who is willing to review and provide more detailed feedback on the decision aid booklet to assist us with future revisions. If you are willing to provide feedback and would like to receive a hard copy, please email Julia Black: Julia@ikcc.org